One True Gift

Holding hands

As the parent of a teenager learning to drive I was an utter failure.  When Natalie took the wheel I was such a basket case that she soon banned me from accompanying her.  Instead, my husband took over, guiding her on trial runs in the St. Patrick’s Church parking lot, hopeful, perhaps, that God would protect them both.

Natalie proved to be a fine driver, however, while I remained a lousy passenger and unhelpful critic, clutching the dashboard and hissing in alarm as we neared other cars.  It’s a testament to her self-confidence that Natalie learned to drive at all.

She’d had her license for several months when she offered to take Daniel for ice cream one evening.  I stood on the grass as she backed down the driveway, shouting advice and directions, gesturing like a crazed traffic cop as she veered toward our neighbor’s lawn.

“You’re not helping!” Natalie yelled out the driver’s window as she inched toward the street.

“Be careful!” I cried redundantly.

“Yeah, yeah, yeah!” she yelled back, waving me off.

“Both hands on the wheel!” I bellowed in reply. “I mean it now!”

As she shifted from reverse into drive, I observed Daniel in the passenger seat, eyes scrunched tight and hands over his ears, desperate, no doubt, to block the din of our banter.  But as I teased Natalie later, it was as though he couldn’t bear to watch as he placed his life in his sister’s hands.

Eighteen months later our mood was less jovial as we moved Daniel to a residential school an hour and a half from home.  He was fifteen years old.  Seven years ago today I let go of my son, placing his welfare in the hands of people I barely knew, relying on faith that we were doing the right thing for our cherished, special child.  It was the most painful thing I’ve ever done.

I had several months to prepare, to accept that he could no longer be educated through conventional special ed channels, or safely cared for at home.  The school we’d chosen was highly regarded, known for its success with students with behavioral issues.  We toured and met the staff, asking every question we could think of.  I talked to friends whose own son resided at the school, comforted by their positive experience.  We were as confident as we could be that we were making the best decision possible under difficult and heartbreaking circumstances.

Yet there was no real way to prepare Daniel for the life-change ahead, to explain that our actions had his best interest at heart, that we’d done everything we could and it was still not enough.  Words could not convey to our non-verbal child our profound love as we left him, in an unfamiliar place, his care now in the hands of others.  My dark fear that he’d believe we’d abandoned him almost broke me as I clung to the fragments of my tattered, trembling faith.

After Daniel’s move I rarely practiced that faith, traveling to Wisconsin most Sunday mornings to visit him.  In truth I was glad for the excuse to leave the church behind.  My parents were both gone by then, their memories filling the space they helped build before I was born, the church of my childhood now imbued with more sorrow than comfort, awash in reminders of all that was lost too soon, the old hymns and liturgies haunting in their constancy, vestiges of what I once believed invulnerable.

A few weeks ago my nephew Ted was scheduled to read scripture at that church, which he attends regularly now, and Andy and I went, too, to be with him.  It was the first time I met the new pastor, installed just six weeks earlier.

“They say ‘America’s Got Talent,’ but I beg to differ,” she joked in her sermon, noting that reality TV rarely depicts a truly useful skill, a precious gift, or a worthwhile endeavor.

“The high school teacher who makes algebra come alive—that’s talent,” she continued.  “The farmer who coaxes seed into food.  The musician who brings tears to your eyes.  The parent whose children know they are loved.”

I missed much of what came next, suddenly back seven years to the third night after we’d left Daniel in Wisconsin.

We’d spoken every day to his floor manager, Kip Kussman, whom Daniel had taken to immediately, learning of his first days without us.  So far he’d adapted remarkably, Kip told us, better than most new residents.  We’d been advised not to visit for thirty days, but Daniel was adjusting so well that Kip thought we may be able to come sooner, possibly for Christmas.

My voice broke with relief and gratitude as I thanked him.

“Daniel is going to be fine,” Kip assured me.  “He is secure in a way I don’t see very often.  This is a child who knows that he is loved.”

I doubt Kip will ever understand how much those words meant to me, that they remain the most meaningful thing I’ve ever been told.

For all the ways I felt we’d failed him, we had given Daniel that one gift.

He knew that he was loved.  He knew that we would come for him again.

It’s been a turbulent few years with my son.  I wonder sometimes if he still knows the depth of my love for him, how I treasure him despite the distance that separates us, if he remembers the love I could once demonstrate each day, waking him in the morning and seeing him to bed at night.  I wonder what my weekly visits evoke in him, if they are like the old liturgies of my childhood, stirring memories of faith once held without question, the melodies now echoing both loss and promise.

Does he know me, still?  Does he remember?  Have the seven years he’s been gone blurred his sense of me, or do I remain one thing he knows to be true, to be constant, no matter what?  He asks for me, but what is he seeking now? Does the memory of my love wound in my absence, or is it one true gift that distance cannot diminish?

I don’t know the answers for sure.  But I keep faith that he does know, that he has always known, that I am with him, that he will always, always be loved.

A Girl Like You

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As a teenager my daughter claimed an aversion to alarm clocks.  Although perfectly capable of getting up on her own, she maintained that the raucous jolt of an alarm set a negative tone for her whole day.  She begged me to wake her personally.

Being a loving mother I obliged, devising a wake-up formula just for her.

She really would have fared better with an alarm clock.

Barging into her bedroom each morning, I’d launch into one of several inane monologues, which all shared a unifying theme.

“Girls like you,” I’d bellow, “you want to sleep late in the morning.  But your moms won’t let you.”  Or, “Girls like you, you think because you’re 16 you can get up when you want.  Forget that!”  And occasionally, “Girls like you, you wish your moms would go back where they came from.  But they’re not gonna.”

Why I fastened on the phrase “girls like you” is a mystery hardly worth probing.  Perhaps an old boyfriend’s frequent muttering of a song refrain that’s stuck in my head since the mid-eighties — “Girls like you always like my style” — was the genesis of the whole thing.

Whatever its source, the “girls like you” drill became entrenched, despite Natalie’s pleas for me to “Stop!” as she pulled the duvet over her head and rolled to face the wall.

For good measure I’d confirm that she wouldn’t go back to sleep when I returned downstairs. “Can I really trust you to get up?” (shortened over time to “Can you be trusted?”)  I’d wait by the door for her aggrieved but unfailing response: “Yes!  I can be trusted!”

Sounds silly, doesn’t it?  Yet it is one of my fondest memories, a pattern woven into the fabric of our lives together, as my daughter grew from a child into the young woman she is now, ready to start the next chapter in her life.

A week from now she’ll receive a Master’s degree in Marriage and Family Therapy from Northwestern University.  My pride in her as one of the top students in her class is matched only by my certainty that she will make a positive mark on the world.

Do you remember those mornings, too, Natalie?  Did you take comfort in a ritual that was ours alone?  Sometimes I allow myself to believe that it was all a front, that your alarm clock phobia was simply a reason to feel me close as you began each day, bracing for whatever challenges adolescence threw your way, strengthened by the knowledge that I was in your corner.

I hope that was part of it, that you recognized that my love for you will transcend whatever unfolds, and you know that wherever life takes you now, I will always be behind you.

If only the act of waking you each morning could truly have shielded you, magically softened the experiences I never wanted you to know, the losses and heartbreak I’d give anything to have removed from your path.  I wish your passage to adulthood had been gentler, untouched by divorce and the sudden deaths of friends, the loss of my parents when you hadn’t yet fully known them, the profound upheaval of the family your father and I had imagined for you before autism changed our lives.

If love was all it took, your life would have unfolded as effortlessly as I’d dreamed it would when you were a little girl, running barefoot down the sidewalk in a flowered dress on a summer evening, laughing with the unfettered delight that was uniquely yours.  I wish I could have captured that moment for you, and made it last forever.

But that wasn’t necessary, after all, for you to become the remarkable young woman you are today.  There is something magic in you that did the job on its own.

Do you remember when I started calling you my shining star?  That’s all right; I can’t remember, either.  It has simply always been so.  You are the daughter every parent hopes for: smart and kind, engaging and beautiful and naturally, genuinely good.  A leader who accepts responsibility even when you doubt your abilities, a friend who can be counted upon, a sibling to a boy who has been blessed beyond measure to have you in his corner.

Even as his disability altered your life so dramatically, as his needs so often eclipsed your own, you embraced him, loving him even when he didn’t express that love in return.  You’ve never stopped trying to reach him, to convey your devotion in a way he will understand.  And there is no doubt in my mind that he does understand.  The strength of your love broke through.

You’re probably reading this and crying “Stop!” as you did all those mornings when I jarred you annoyingly from sleep.  Don’t worry.  I’m not claiming that you excelled at everything.  Piano lessons, for example, come to mind.

What sets you apart is your willingness to try, to test yourself, your commitment to see things through without giving up.  You’ve gone forward even when you felt like quitting, and have inspired me to do the same.  You have forged the painful chapters of your life into something meaningful, something hopeful and positive and worthwhile.

Stop rolling your eyes; it’s not just your mom saying these things.  Remember what your teachers have told you for the last two years: you are incredibly smart, gifted and compassionate; you have what it takes to be an excellent, effective therapist; and most important of all: you have a good soul.

Looking back now, I realize I had it wrong all those mornings with my “girls like you” routine.  There is no one else in the world like you, beautiful Natalie.  A girl like you is one of a kind.

My aim as your mother has always been to give you and Daniel what each of you needs, in spite of your vastly different abilities.  I prayed that I would not let your brother’s disability cripple me, so that in turn I crippled you; that I would not hold you back through my own grief and self-doubt, that my longing to protect you as recompense for autism’s impact would not hinder your own confidence and initiative.

I don’t know if I succeeded.  I pray you will forgive me for all I’ve done wrong.  But it doesn’t really matter if I succeeded or not. Because you have.

Your success is demonstrated in the way you are living right now, as I write this, with details still uncertain, as you are waiting to see what lies just beyond your sight.  And waiting for what is yet to be revealed is one of the hardest things in the world to endure.

But you are doing it, my beautiful girl.  You keep moving forward, strong enough to confess your fears even as you take the next step, and the next after that.  You remind me of your grandfather, who knew the only way through it is through it, who put one foot in front of the other until he reached where he aimed to go.  He is smiling down on you now, sweet Natalie.  He is so incredibly proud of you, as am I.

Each day I marvel anew at the woman you have become, standing on the threshold of independence and all the wonder the world has in store.  I know you will never give up until you have found your true place, the place you are meant to be.  And you will make that place better than it was before.  This is one thing I know for sure.

You can be trusted.