Bon Appetit and Goodbye

Pancakes

I wrote this essay seven and a half years ago, several months after moving my son to a residential school an hour and a half from home.  Reading it today, I’m surprised at its lighthearted tone, when my heart had so recently broken.  I understand now my need to fend off a loss so deep I couldn’t fully acknowledge it all at once.  Nevertheless, I like this piece, which reflects my feelings around the changes in our family at that time.  I hope you’ll enjoy it, too.  —Kristen 

 

By the time I learned to cook it was too late.  And by learning to cook I mean finding the right cookbook, brimming with simple but enticing recipes for the culinarily unimaginative, no trip to Foodstuffs required.  After years recycling the same six or seven meals week after ho-hum week, “Weeknight Meals for Busy Moms” seemed like a godsend.

Except I’m not really a mom anymore, not in the sense that has defined me for so long.  My son no longer lives with me, and my daughter has one foot out the door, leaving for college in less than six months.  My husband’s schedule is erratic, bringing him home some evenings as late at 9 p.m.

Which leaves me alone in the kitchen, a slate of brand new family recipes on tap, my family no longer at the table.

“Wait!  Wait!” I want to cry.  “I’ve got it together now!  June Cleaver is in the house!”

But time waits for no mom.  I recognize the irony of finally mastering the art of the family meal just as my family scatters to the winds, symbolic of the loss I feel around the changes of the last three months, and those that are yet to come.

It wasn’t as if I didn’t try.  But the vaguely held images of well-balanced meals prepared with unhurried competence, then shared at a cozy table by my serene and typical family, never fully (or even partially, actually) materialized in real life.  More often I recall slapping together meals of rotini with a side of orange slices, or scrambled eggs and toast, if I hadn’t forgotten to buy bread.

And my family isn’t all that easy to please, either.  As a boy, my son displayed disdain for most every food offering (even those in my famous Top Five) only satisfying my frenetic attempts to nourish him with an occasional cup of lo-cal lemon yogurt.  During adolescence, when his growing appetite placed him in the “clean your plate and then some” club, my daughter’s willingness to eat virtually anything with calories diminished to the alarming but typical proportions of a teenage girl.

My husband, meanwhile, eats nothing containing butter, sour cream, cream cheese, cheese sauce, mayonnaise, hollandaise, béarnaise or any other coating, while alternately clamoring for more steamed vegetables and asking why I didn’t buy cookies at Costco.

So many of my half-formed ideas of what “family” means have reluctantly shifted since I had a family of my own.  The demands of parenting a truly atypical child were greater than I could have dreamed possible, and what I’d considered “normal” and “healthy” and “secure” flew out the window in the face of my son’s disability.

Mealtimes were just one of a slew of ordinary experiences impeded by his unique needs.  Eating in restaurants, family vacations, doctor visits, attending a movie or strolling the zoo; Sunday school, music recitals, a walk in the neighborhood, buying an ice cream cone – each formative and familial experience I had envisioned for my children took on new and often forbidding overtones in the world of autism.

My son’s move almost three months ago to a residential school for developmentally disabled children should have brought a welcome normalcy to our home, an easing of the uncertainly his volatility lent our lives.  And perhaps this will come.  For now, though, his absence is a loss impossible to imagine healing with time.

I still reach for his evening medications when I glance at the clock at 7:45, and feel the stab of emptiness as I pass his room on my way to bed.  The constant struggle of those last grueling months isn’t so vivid right now; instead, I recall the tenderness of his hand against my face as we read the same books, night after night, as the day wound down.

I long now to recapture something as it slips away and changes shape again.  That normal family around the dinner table could be mine, I tell myself, if I just had another chance.  I’d do it right this time.  Yet I recognize that I’m holding onto to an ideal that is merely that, a fantasy painfully relinquished as I did what was necessary to keep my family whole, however unconventionally that evolved.  The home front I forged as mother is not the one I intended, but it is ours and ours alone.

Today I remember the conversations my daughter and I shared over another round of “Chicken with Bread Crumbs” or “Pasta Salad with Italian Dressing,” watching her grow from hesitant girl to confident young woman in the process.

Or my joy at the sound of my son’s voice last fall, clear and decisive, asking for a second helping of one of my dinnertime masterpieces.

“Pancake!” he cried cheerfully.  “Pancake!”

Pancakes it is.

Cracks in the Sidewalk

nat and me 073114

One of the appealing features of the neighborhood where my first husband and I bought our home was the sidewalk encircling the whole block.  It was a common gathering place for residents, and an ideal circuit for walkers, runners or strollers.

As a young mother I made dozens of laps along the half-mile oval from my front door and back, pushing a stroller, pulling a wagon, or walking hand in hand with my children.  The sidewalk served as a natural boundary for the kids, too; Natalie, at least, learned to stay on the right side of the walk, clear of the street beyond.

When she was about six years old, I sat on my front steps as Natalie ran down that sidewalk, eager to reach her best friends, sisters who’d just come from their house across the street.  I watched as my happy daughter suddenly tripped on a crack and sprawled face first on the concrete, landing, fortuitously, at the feet of our dentist, the neighbor girls’ father, Lenny.

It looked worse than it was.  No broken teeth, no split lip, not even a bitten tongue.  Just a scrape and a scare, tears quickly soothed in my genial, even-tempered daughter.  An unexpected mishap, soon forgotten, one of countless more to come over the course of her childhood.

For years after my son’s diagnosis I desperately craved a road map, some clue to what was coming next.  I don’t know if I feel that way any more.  Would I have had the courage to continue, to face all that lay ahead, if I knew how often, how painfully I would fall?

Years ago my daughter and I attended a “psychic” party hosted by Natalie’s stepmother, Mary.  With no strong views on clairvoyance going in, I came out a believer: with a glimpse of my palm, Deb discerned facets of my life she couldn’t possibly have known, but did: I was an insomniac, a fledgling writer; I had another child, who did not speak, and had recently lost my father.  It was uncanny.

We visited Deb several times in the ensuing years.  She was so frequently on target that I trusted her gift, although, perhaps heedlessly, never actually based life decisions on her insights.  It was all just in fun.

Two months ago Natalie and a few girlfriends scheduled readings with Deb, and drove from Lincoln Park to Downer’s Grove on a Wednesday evening during a heavy snowstorm.  Although she’d just turned 25, I couldn’t help worrying, and sent Natalie a text about eight p.m. to make sure they weren’t stranded in a snowbank.

Undoubtedly it would have been better for both of us had I not done so.  Our texting went pretty much like this:

“Andy says driving is awful so let me know when you guys get home, OK? xo”

“I will.  Anita is finishing her reading and then Ari still has hers so it’ll be a while before we leave”

“Have you had yours?”

Yes”

“Well??”

“All positive… She sees a big move for me though in 6 months so start preparing yourself”

“Wtf?!?”

“Hahahahahahaha”

“A geographic move???” …. “Andy says ‘Maybe she’s moving back home’”

“Hahahahahahaha. Yes a geographic move.”

“Noooooooooooo! (wailing emoji face)  You can’t leave me! (wailing emoji)  Omg my life is over”

“She said you would react that way…”

“Screw that shit!”

“Oh calm down.”

“What about your work??  Your licensing???  Omg”

“Ok, you’re ruining the fun, please stop”

“Where are you going??  I’m coming with you”

“I shouldn’t have said anything to you”

(Forty-five minute break while I attempted to compose myself)

“Well still let me know when you get home please”

“I will, we’re finally heading back now”

(One hour later): “Made it safely home alive”

“Good!  Thanks for letting me know. xo”

“xoxoxoxoxoxo”

Yeah, I know.

Overreactive.  Needy.  Profane, to boot.

In the weeks since that exchange, I’ve struggled to understand my response, my utter panic at the thought of Natalie leaving the Chicago area, the seismic shift in our relationship I’ve allowed myself to imagine such a move would provoke.  My husband suggests that the changing relationship with my son makes me more sensitive to any threat to my role in Natalie’s life.

But it’s more than that.  Daniel’s disability has influenced our lives and our relationship immeasurably, but my bond with Natalie is unique.  My relationship with my daughter is one of the foundations of my life.  Losing her would be unbearable.

My mind leaps to such extremes, to all or nothing scenarios.  I imagine her taking a job on another coast, building a separate life, starting a family I’ll scarcely know.  I’ll be a part-time character in the cast of her world, cramming into rushed visits the intimacies we now routinely share.  She’ll become a whole new person as I watch, wistfully, from the sidelines.  Just as millions of moms do every day.

I don’t want to be one of those moms.

I want my daughter, near at hand, coming here on her day off to do laundry, stock up on paper towels, and store sweaters in my attic when the weather turns warm.  I want to go to Macy’s together and buy her a lipstick, to witness her reaction as she sorts through her Easter basket and finds the “Instant Weirdo Glasses” I’ve tucked inside.  I want to be a quick drive away if she gets ill, to be the one she calls when her apartment loses power for the first time.  I want to join her and Andy at the dining room table as she completes her first grown-up tax return, to trade scornful commentary while watching The Real Housewives of Beverly Hills.  I want to share salads at Panera, face to face, as she describes the young man she’s dating now, her friendships, the challenges and rewards of her new career.

For years I longed to know what lies ahead.  But if what’s ahead is the loss of one ounce of what I have with my daughter, I don’t want to know.

Of course I’m not alone in these fears, the gnawing uncertainty of what life has in store.  Doubt is normal, trust in a benevolent future hard to maintain in a world so often unkind.  I miss the unguarded trust I once held, though, during the happiest days of my life: drifting along that tree-lined sidewalk with my perfect baby daughter, rich with the fullness of my world, the profound good fortune I knew, even then, I’d done nothing to earn.  When autism threw a wrench in that trust, I never fully recovered.

The future is ripe with possibility now, especially in relation to my daughter.  She is thriving and maturing and finding her own way, the very circumstances for which I’ve been hoping to lay the groundwork for years.  Since the day she was born I’ve believed that my most essential role is to help her find her own path, yet I’m afraid to succeed if it means losing a part of her.  I want her to stay with me, right here, on my side of the sidewalk.

I remember another moment on that sidewalk, when three-year-old Natalie ran toward me, laughing with joy.  Her dress billowed behind her as her bare feet slapped the pavement with quick, confident steps, her smile clear and open and sure as she came to me, and I understood then: You will never forget this moment, Kristen.  You’ll always have this moment in time.

I’m glad you aren’t afraid to run, beautiful girl.  The cracks in the sidewalk are no match for you.

And they’re no match for my love for you, the bond sealing your heart to mine.

That bond is strong enough to stretch around the world and back.

xo